Disability Confident

Specialist Themed Programme: ‘Terminal Illness and Long Term Conditions in the Workplace’

Welcome all Disability Confident employers to the next in the series of Specialist Themed programmes.

Disability Confident is constantly looking to extend the offer to employers that sign up to the scheme. To help you on your journey, Disability Confident Leaders are sharing their best practice, advice, guidance and resources around the topic of Terminal Illness and Long Term Conditions in the Workplace.

Please see the programme below, which runs from 25th October to 31st October 2018, which I hope you will find useful. As a Disability Confident employer, the Specialist Themed programme is free of charge.

The programme includes:

  • Organised events
  • Videos
  • Good practice toolkits and guides
  • Social media activity (LinkedIn and Facebook)
  • Blogs and links to video-blogs.

Terminal Illness and Long Term Conditions in the Workplace

It’s fair to say that we don’t talk about death and dying enough in society and it’s the same in the world of work. Supporting workers with a terminal illness or long term condition demands a supportive and caring approach and is distinct from general ill health.

Terminal illness can impact anyone of us during our lives, from the CEO of a corporate organisation to an apprentice. No matter what job you have or industry you work in, suddenly we could find ourselves in this extremely difficult situation. And when people are in such vulnerable positions it is important that they are given as much support as possible.

I think we can all agree that the last thing a terminally ill person should have to worry about is their job.

That is why it is important that through this specialist thematic programme, Disability Confident Leaders share as much information about this subject as possible.

The TUC Dying to Work Charter is an example of best practice of supporting terminally ill workers. At the heart of the Charter is the emphasis on the individual having choice. A choice about whether they want to continue to work, whether they leave to spend time with their families or work for a period of time before leaving their employer – all free from the fear of being dismissed on capability grounds.

By signing the Dying to Work Charter, an employer is making a commitment to their employees and by doing so, giving them the reassurance that should the worst happen, they will not be dismissed and their families’ financial security put at risk. This message is likely to result in a more engaged and motivated workforce with a potential positive impact on productivity. Contrast that with the potential impact on the morale and productivity if a valued member of a close knit team received a terminal diagnosis and wasn’t supported fairly throughout their illness.

By signing up to Disability Confident and the Dying to Work Charter, you are demonstrating the values that many consumers want to see in businesses and public services.

Disability Confident Team

SME Pellacraft, tell us why they signed the charter

Programme Details

Full details on how to access the materials, resources and to sign-up to specific events are included below:

Launch Event
25th October 2018
Ministerial Specialist Thematic Launch Event: Terminal illness and Long Term Conditions in the Workplace.
At E.ON – Invitation Only
Macmillan Event
25th October 2018
Macmillan event at KPMG Nottingham to help support employers better understand how to support employees with a diagnosis of cancer in the workplace.
At KPMG Nottingham – Invitation by Midlands Ability Network
The Dying to Work Charter
26th October 2018
The Dying to Work charter offers employers an opportunity to learn how to best support employees that are diagnosed with a terminal illness.

TUC General Secretary, Frances O’Grady, speaks about the Dying to Work Campaign
Cancer Support at Zurich
27th October 2018
The number of people living with Cancer is expected to grow by around 1 million every decade between 2010 – 2030 (Macmillan).
Therefore we can safely assume that returning to work after Cancer treatment will be more common. Cancer is slowly becoming a chronic condition.
The following video and Karen’s story will give you an insight into the mind of an employee Living with Cancer & will show how important it is to ensure our Managers receive the right training & support so they in turn can provide valuable support & understanding.
Line Managers Guide: Model advice and guidance for Line Managers
28th October 2018
Nottinghamshire County Council has provided a guide that can support line managers to understand how best to support people with a terminal illness or long term condition in the workplace.
Employer Toolkit
29th October 2018
With over 890,000 people of working age living with cancer in the UK, cancer is a key issue for employers and employees.
Macmillan at work has been developed to help Line Managers and HR professionals feel equipped and confident in supporting employees affected by cancer.
You can sign up to Macmillan at Work to receive a free toolkit and access to expert training, resources and advice to help you support staff affected by cancer at work.
Compassionate Communities
30th October 2018
Compassionate Communities Derbyshire (High Peak) aims to encourage people and communities to talk about death, dying, bereavement and loss, to enable people to share their preferences and wishes about the future and to support each other in practical and emotional ways.
Advice, Guidance and Training
31st October 2018
With increasing demand for labour, low unemployment and a need to retain highly skilled and valued staff, there is not only an ethical, but also a business imperative to commit to the Dying To Work Charter.
As a provider of palliative and end of life care, we at Ashgate Hospicecare are uniquely positioned to understand the impact a terminal diagnosis can have and the difference a supportive employer can make from the perspective of both employer and care provider, as well as counsellor and benefits advisor.
We offer guidance and practical advice, including case studies to support employers in getting it right. Further training to support line managers and HR teams is also available.

Becoming a Disability Confident Leader

You may want to consider how your business can be recognised as being a Disability Confident Leader. This involves having your self-assessment validated and being able to demonstrate leadership.

Read about becoming a Disability Confident Leader ▶
Guidance on employing disabled people and people with health conditions ▶